Blog Posts
its been awhile
Posted by Esther on March 10, 2010 at 10:08pm — 2 Comments
New Hemophilia Book
Posted by Tammy Davenport on March 8, 2010 at 3:53pm — 1 Comment
New Port Placement
Posted by Ryan Rotenberry on March 7, 2010 at 4:36pm — 4 Comments
Hemophiliac New to this site
Posted by Ryan Rotenberry on March 6, 2010 at 11:30pm
College student new to site
Posted by Grant Hiura on March 4, 2010 at 6:24pm
Forum
hemophilia and pilot's license
I'm pretty technologically challenged, but I saw that the question was asked, I believe by Tina Olson, as to whether someone with hemophilia can get a pilot's license. So, I wanted to respond that th…
Started by R. Louise Cobb in Hemophilia Events Mar 10.
homecare 1 Reply
I am trying to decide on a homecare company. I don't want specific names of homecare companies, just would like to know what factors I should consider in picking one. At the time we are doing on de…
Started by Tina Olson in Hemophilia Events. Last reply by Tammy Davenport Mar 10.
Your Fitness 3 Replies
In response to the mass message that went out last week, we'd love to hear about your fitness. Leave your story here.
Started by David Moore in ALL. Last reply by Andy Blackledge Mar 7.
Pilot's license 4 Replies
Hello, does anybody know, whether hemophilia is a disqualifying condition for getting a pilot's license?
Started by Martin Zidek in ALL. Last reply by R. Louise Cobb 4 hours ago.
SweetAffliction.com
Sweet Kelsey Girl August 4, 2009 – February 20, 2010
Yesterday at 4:15 pm, Feb, 20, 2010, sweet baby girl Kelsey Matthews passed away peacefully with her Mom, Dad and big brother Keeton lying by her side. Though her short time on our earth was a struggle from the beginning until the end, Kelsey touched the lives of so many people in ways she will [...]Lessons on Prophylaxis
My name is Jonathan and I have severe Hemophilia A. I am 31 years old, married to the love of my life, have four kids, and I am a Financial Advisor. I have a real passion for the hemophilia community and am constantly looking for ways to give back. My wife and I started a [...]Copewithme.com
Attack Of The Ice!
Six more weeks of winter and my goal was not to get injured. It was a typical Sunday. I got up, showered got dressed and went to church. After church, I went home and got changed and went with some friends to go watch the super bowl. While at my buddies house we were outside helping with the farm chores. After the chores we had a snow ball fight and we were just messing around in the snow. That whole [...]New Semester
New Semester!New Semester in school and I feel like a new man! Classes are going well so far; unlike last semester, when I had that horrible nose bleed in class. My Hemophilia has actually been treating me pr [...].
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Barry, A True Blood Brother
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My Brother Bobby
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Events
RSS FEED of Laurie Kelley's HemaBlog
Spotlight on Inhibitors: Novo Nordisk CEO Visits US
Last week I had the unique pleasure to meet, along with three other community patient representatives, the CEO of Novo Nordisk, Lars Rebien Sørensen, in the Princeton, New Jersey offices of Novo Nordisk US. To my knowledge, this is the first time he has met with patients from the American hemophilia community. Novo Nordisk is a leader in diabetes therapies, and also the only provider ofInternational Updates
An 8.8 earthquake rocks Chile this weekend--a second major earthquake in a developing country in only 6 weeks. So many people asked about those with hemophilia in Haiti, that I'd like to reassure everyone that Chile has a very good hemophilia health care system, and those with hemophilia should be well cared for, even following the quake.And I have good news about Haiti: we learned that one boyAmerica’s “First Family” With Hemophilia
Last week I wrote about the most famous carrier of hemophilia, "Young Victoria," and that got me thinking that we have our own royalty, America's first family with hemophilia, the Appletons. This article is from a 2002 issue of PEN, and well worth reading! And, I live about 15 minutes away from the family farm!New England, 1639. Imagine that you are standing on the deck of the sailingshipBirthdays
Birthdays Tomorrow
Many of our members are from industry. It's great to have a venue where we can communicate openly regardless of our affiliation.
Enjoy the site!
David
Founder | MyBloodBrothers.com
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Raising our child in the middle of bruises and visits to the center… Educando nosso filho entre um sangramento e visita ao ambulatório…
As parents we know that our children will have to face the days at school, later college, first job, first love… it’s an endless list of happenings, of events that we can’t control. But what we can do is to transform an event into a SIGNIFICANT EXPERIENCE. If you change the idea you have about your [...]
With eyes closed ;)!Body language / Consciência corporal: sentir os pezinhos pisando firme
SINCE BRUNO’S first visit 2 years and a half ago at our Hemophilia Center, I had participated with the young parents in the process of raising their first child with severe hemophilia A. Prevention of over protection, early self awareness, talking to the child even when very little about how to climb and getting down of [...]
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Your Child Has Hemophlia!
I will never forget the day those words were spoken to me! All three times!I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!
I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!
How did you feel when your son was diagnoised? How did you know your child had a bleed?
Make it a great day!
Lori
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