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Tina Olson

medical bills

Posted by Tina Olson on February 8, 2010 at 1:14am

Anna Landseadel

Texas Hold'em Poker Tournament Fundraiser!

Posted by Anna Landseadel on February 1, 2010 at 5:02pm

Brandon Freund

had our first scare

Posted by Brandon Freund on January 29, 2010 at 2:00pm — 6 Comments

Forum

Mike Hargett

I have to get my wisdom teeth pulled!!?!?!? 9 Replies

Has anyone ever had this done? I'm a little worried don't know what to expect my HTC gave me Amicar to help with the bleeding but I was curious if anyone ever had that done and if so what did you hav…

Started by Mike Hargett in Hemophilia Events. Last reply by Tina Olson Feb 4.

ezzi mohammed

Migration 5 Replies

I'm hemophiliac ,27 years old student from morocco, the contry isn't a rich one so the health care here for hemophiliac isn't good (if it existe because they don't give us factor only if it's to let…

Started by ezzi mohammed in ALL. Last reply by samuell price Jan 24.

kevin

Health insurance "Homeland Health Care" 5 Replies

I am a severe hemophiliac with HIV and hepatitas. I work fulltime and currently have good insurance. My boss is going to cut our insurance and probably go to "Homeland Health Care." This insurance pa…

Started by kevin in Hemophilia Events. Last reply by Greg Price Jan 28.

Mary Beverstein-Valance

Surgery today! 7 Replies

Well - the BIG day is here! We will be leaving arond 8am for the hospital. Thank you to everyone who sent well wishes...I know some of you will text my cell# - I'm not the greatest texter (I don't ha…

Started by Mary Beverstein-Valance in Hemophilia Events. Last reply by Carri Nease Sep. 19, 2009.

SweetAffliction.com

Lessons on Prophylaxis

My name is Jonathan and I have severe Hemophilia A. I am 31 years old, married to the love of my life, have four kids, and I am a Financial Advisor. I have a real passion for the hemophilia community and am constantly looking for ways to give back. My wife and I started a [...]

FLYING HIGH WITH HEMOPHILIA

Have you ever had a dream that you just knew you had to fulfill?  Something you just knew your life would not be complete without?  So it was for “Brownie”, a thirty-something airline pilot living (and flying) with hemophilia. Brownie started flying at the ripe old age of ten.  His first flight lesson recorded in his [...]

Copewithme.com

New Semester

New Semester!New Semester in school and I feel like a new man! Classes are going well so far; unlike last semester, when I had that horrible nose bleed in class. My Hemophilia has actually been treating me pr [...]

Nose bleed and hot girls!

So the day was going well, I got through my Medical Terminology class and my Allied Health class just fine…... Two more classes to go and I was home bound!After I was done eating lunch, I got my books and proceeded to walk to class. I arrived to the class room about five minuets early. Awesome I thought to myself, this is going to be [...]
 

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Members

  • Brian  Herren
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  • Tina Olson
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  • Michael Wesley Stratton
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  • Michael Schultz
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  • Brandon Freund
  • Don Heller

Events

RSS FEED of Laurie Kelley's HemaBlog

Our New Scholarship: Alex Lieber Memorial Scholarship

I am very pleased to announce that we are offering a new scholarship for young men with hemophilia or anyone with von Willebrand Disease. And best of all, we are offering this as a way to help pay for books, travel costs, dorm living... anything that the student needs to help get them through a semester. The scholarship will not be given as a payment to the college, but as American Express cards in the amount of the scholarship. This will help the student practically and they can be used immediately.

We've tried to make it simple. The candidate should have decent grades and of course a bleeding disorder, but what we are really looking for is someone with compassion and initiative, someone with solid volunteer experience.

This is important because it reflects the values of the young man we seek to honor through this scholarship, Alex Leiber of Texas. Alex was only 16 when he was struck with bacterial meningitis. He died on December 21, 2003, just four days before Christmas. Within just 48 hours, he was gone, leaving behind a heart-broken family and many friends who have kept his memory alive. You can read about Alex and what a remarkable young man he was on the scholarship page. Stories about Alex were actually submitted by his mom Tammy to me when he was just a child, for the first edition of my book Raising a Child with Hemophilia, back in 1990. Like everyone, I was devestated to hear we had lost him.

We are so proud to be able to offer this scholarship to honor Alex, and thank Tammy and Jim Lieber for allowing us this privilege. The Alex Lieber Memorial Scholarship is offering two $1,000 scholarships. Persons with hemophilia or von Willebrand disease accepted to an accredited college, university, or vocational/technical school can apply. Candidates must be able to demonstrate a strong record of volunteer service.

The deadline is April 1, 2010. You can apply here: http://www.kelleycom.com/AlexLieber/application.php

We hope to hear from you! And God bless Alex and his family, now and always.

Interesting Book I Just Read
The Story of Edgar Sawtelle by David Wroblewski


This is an intriguing fiction, about a mute child growing up in a Wisconsin family that breeds dogs, dogs so well matched genetically and trained that they command premium prices. The story is about love and disappointment, family members and dashed expectations, and loss. Much loss. Edgar's muteness gives him a special bond with his dogs, whom he learns to train. The father and mother love Edgar, and their dogs. But tragedy strikes when Edgar's beloved father dies suddenly. And herein lies the trouble for me... the book, so lyrically written, with such amazing prose, and imagery that will have you even put the book down and wonder how someone could write like that... just seems to then take a Hollywood cookie-cutter approach. I suddenly saw this story, which spends an awful lot of time with tremendously detailed background about dog breeding, and the family's own roots and members, and presents deep psychology, become, well, like a screenplay. A whodunit.

And there are multiple comparisons that could be made to the Jungle Book (both Wroblewski's and my favorite childhood book) and Hamlet. Well, is it Mowgli or Hamlet? Pretty different comparisons. There are even allusions to Colton Harris-Moore, the barefoot burgler kid of Camano Island (the one who steals planes). Some characters are just not explained well at all. Others, like the amazing character of Almondine the dog, are brilliant and consistent. The book is over 500 pages, not an easy read for most, and after I realized it was going to be a whodnit with a denouement that I can just see up on the big screen, it kind of lost its charm for me. I found myself just flipping pages fast to get through it. (And let it be known I devoured every page of Moby-Dick) The writing, however, is superb. My daughter is now attending the college that Wroblewski attended, and she's a pretty good writer herself. I know this is a good book (rave reviews from most critics), but despite the masterful imagery, and an unforgettable central character in Edgar, I just saw a sell out somehow; it started so fresh and wondrously creative, then kind of nosedived into this ridiculous Columbo-style plot (although Columbo was better). The ending is unbelievably depressing. But it's still worth a read. Two stars.

Birthdays

There are no birthdays today

DISCLOSURE: As the founder of this site, I want to disclose my employment with a home infusion provider. I personally fund the creation/maintenance/promotion of this site, own the web domain, and do not share content with any individual or company. Soliciting by any member is strictly prohibited.
Many of our members are from industry. It's great to have a venue where we can communicate openly regardless of our affiliation.
Enjoy the site!
David
Founder | MyBloodBrothers.com
 
 

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philippe bodart is now a member of mybloodbrothers
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Tina Olson added a blog post
My son was diagnosed Hem A in October. I am wondering how to pay off these hospital bills already. We were almost at our maximum out of pocket just sept- dec. Now the new year they are starting all over again. I don't think they can be paid off with…
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Greg Price Snowy, miserable day in St. Louis, wish I had extra, special edition black golf balls:)
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Brian Herren was featured
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Brian Herren Just on here to keep everyone updated on me and my son Tristan, and so I can meet new friends, that go through the same things my son does.
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Para uma professora de EDUCAÇÃO física

Querida Mônica, Primeiramente gostaría de te parabenizar pelo teu interês específico na hemofilia para poder atender adequadamente e eficazmente o desenvolvimento do seu aluno Higor. Com certeza a atividade física é muito importante. Terás lido no Hemoação que estimular os músculos, ajuda a fortalecer as articulações, e portanto ter menos sangramentos. Más temos que ADEQUAR os excercícios considerando estos [...]

SE TODAS AS GUERRAS FOSSEM ASSIM… if all wars were only like that….

I WOULD LIKE TO BE PART OF THAT!! ADORARIA FAZER ESTA GUERRA DOS TOMATES ! Guerra dos tomates maduros em Bunol-Valença em Espanha. Que melecagem..deve ser divertido.tomatina-001.jpg TOMATOES WAR in Bunol-Valencia, Spain. It looks like a battle field..only that this one looks really funny! Tagged: crianças, funny, red symbolism, sangue

RSS

Happy 16

My son turned 16 this week, I am so proud of him. He has severe hemophilia and we have worked so hard at not allowing the hemophilia to run our lives. He has had a few knocks through the years, broken ankle and arm , a hit to the head, a bleed that lasted 6 weeks behind the knee, hemorrhaging Adonises, an elbow here and there, not to forget the mussel bleeds now and then.

He is walking with out a limp, 95%+ range of motion on all joints, a mended arm and no target joints.

He is getting his drivers license this week, spending weekends with friends even out of state and once in a snow cave. He rides dirt bikes, quads, snowmobiles and plays a full menue of sports. He has taken full controll of his inconvience and is powering on to be the best he can be.

What more can you ask for a well rounded kid, ready to take on the world

You new moms out there remember hemophilia is a small inconvience not a handicap
enjoy your children

Happy Birthday to my Alex
 

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