NHF - 2009 San Francisco
Event Details
Time: October 29, 2009 to October 31, 2009
Location: San Francisco, CA
Website or Map: http://www.hemophilia.org/NHF…
Event Type: annual, meeting, nhf
Organized By: David Moore
Latest Activity: Oct. 28, 2009
Event Description
NHF's 61st Annual Meeting
October 29-31, 2009
San Francisco, CA
Comment Wall
Comment
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Comment by Hope Woodcock on October 26, 2009 at 7:16pm -
Hi all I will be there from Wed-Sun. I am on the NHF nursing working group so I will be in nursing/ doctor sessions alot. Hope to meet some of you there!
Hope
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Comment by Tammy Davenport on October 17, 2009 at 11:20pm - Can't wait!!
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Comment by Baby T's Mom~ Kendra on October 17, 2009 at 1:05pm - Wish we could go, been wanting to attend since Tristan was diagnosed.
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Comment by Siddhartha Ojha on October 16, 2009 at 8:17am - It is not possible for me travel down but it will be really interesting to attend and know that what is the latest development with NHF's .
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Comment by cindy morales on October 14, 2009 at 1:06pm -
yes we will be there we will be with are chapeter so if it is ur first time up in SF let us know and will let u know what to due in this big city of ares and look out for My son story it is being show in the Baxter booth
visit me at the HFNC booth on thursday
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Comment by Erik Melde on October 14, 2009 at 12:28pm - Hey Brothers (and sisters). I will be at NHF in San Francisco! I'd love to meet up with anyone and shake hands with my extended family members. Is there a time and location we could meet? I'd be happy to set something up if everyone was interested.
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Comment by DD on October 14, 2009 at 11:31am
- We are coming......
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Comment by Colby J Lytch on October 14, 2009 at 10:57am - I am looking forward to it!!
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Comment by Joshua Shear on September 16, 2009 at 7:11am - I will be there! I am so excited. This will be my first NHF meeting out of state. I have attended the NHF On The Road in Scottsdale some years back.
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Comment by Carri Nease on May 28, 2009 at 7:41pm - wish we could-- maybe when it's back on this coast... I'd give my address to anyone who wants to send some neat NHF loot though... and a few bucks for shipping?
Latest Activity
My daughter turned one this past Sept too!
Third Annual "Clot Trot" 1 mile/5K walk/Run, Richland, WA at Howard Amon Park, Richland, WA
April 13, 2010 from 6pm to 7:30pm
Third annual Clot Trot informational 1 mile/5K walk/run for Hemophilia awareness
thanx. he turned one back in September but i just got internet back so i was able to add the pic.
Cute!!! 1st b.day pics are the best!
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Rising or Setting…the Sun is my star/ Amanhecendo ou se pondo, o Sol é minha estrela
Cada dia é uma oportunidade para “encarar” este mundo nosso, com seus momentos malucos de alegria ou de penas…momento de revisão, re-visitação onde o velho de ontem pode ser incorporado ou descartado…o novo pode ser bem recebido ou evitado…muito depende de nosso olhar. Abraço! Each day is an opportunity to “face” this world we live in…with [...]
Raising our child in the middle of bruises and visits to the center… Educando nosso filho entre um sangramento e visita ao ambulatório…
As parents we know that our children will have to face the days at school, later college, first job, first love… it’s an endless list of happenings, of events that we can’t control. But what we can do is to transform an event into a SIGNIFICANT EXPERIENCE. If you change the idea you have about your [...]
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Your Child Has Hemophlia!
I will never forget the day those words were spoken to me! All three times!I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!
I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!
How did you feel when your son was diagnoised? How did you know your child had a bleed?
Make it a great day!
Lori
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