Discussion Forum (118)
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Your FitnessIn response to the mass message that went out last week, we'd love to hear about your fitness. Leave your story here. Started by David Moore in ALLLatest Reply |
MigrationI'm hemophiliac ,27 years old student from morocco, the contry isn't a rich one so the health care here for hemophiliac isn't good (if it e… Started by ezzi mohammed in ALLLatest Reply |
cutting teethMy 5 month old is cutting teeth but they dont seem to be coming threw yet. We had giving him teething rings and everything but sometimes it… Started by Esther in ALLLatest Reply |
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Pilot's licenseHello, does anybody know, whether hemophilia is a disqualifying condition for getting a pilot's license? Started by Martin Zidek in ALL |
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4 hours ago Reply by R. Louise Cobb |
hemophilia and pilot's licenseI'm pretty technologically challenged, but I saw that the question was asked, I believe by Tina Olson, as to whether someone with hemophili… Started by R. Louise Cobb in Hemophilia Events |
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homecareI am trying to decide on a homecare company. I don't want specific names of homecare companies, just would like to know what factors I sho… Started by Tina Olson in Hemophilia Events |
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Mar 10 Reply by Tammy Davenport |
Factor 8 MutationWe found out yesterday from the DNA test that my son's factor 8 mutation is the same as only 10 other families in the WORLD. I didn't quit… Started by Tina Olson in Hemophilia Events |
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Mar 9 Reply by Tina Olson |
Your FitnessIn response to the mass message that went out last week, we'd love to hear about your fitness. Leave your story here. Started by David Moore in ALL |
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Mar 7 Reply by Andy Blackledge |
cutting teethMy 5 month old is cutting teeth but they dont seem to be coming threw yet. We had giving him teething rings and everything but sometimes it… Started by Esther in ALL |
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Feb 21 Reply by manishfusion |
I have to get my wisdom teeth pulled!!?!?!?Has anyone ever had this done? I'm a little worried don't know what to expect my HTC gave me Amicar to help with the bleeding but I was cur… Started by Mike Hargett in Hemophilia Events |
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Feb 19 Reply by Armando Serrano |
HFA - MissouriOk everyone. What is the topic going to be at the HFA Blood brothers meeting on Saturday? My family is going to attend this year! Since… Started by Anna Landseadel in Hemophilia Events |
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Feb 18 Reply by Baby T's Mom~ Kendra |
Health insurance "Homeland Health Care"I am a severe hemophiliac with HIV and hepatitas. I work fulltime and currently have good insurance. My boss is going to cut our insurance… Started by kevin in Hemophilia Events |
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Jan 28 Reply by Greg Price |
MigrationI'm hemophiliac ,27 years old student from morocco, the contry isn't a rich one so the health care here for hemophiliac isn't good (if it e… Started by ezzi mohammed in ALL |
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Jan 24 Reply by samuell price |
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Raising our child in the middle of bruises and visits to the center… Educando nosso filho entre um sangramento e visita ao ambulatório…
As parents we know that our children will have to face the days at school, later college, first job, first love… it’s an endless list of happenings, of events that we can’t control. But what we can do is to transform an event into a SIGNIFICANT EXPERIENCE. If you change the idea you have about your [...]
With eyes closed ;)!Body language / Consciência corporal: sentir os pezinhos pisando firme
SINCE BRUNO’S first visit 2 years and a half ago at our Hemophilia Center, I had participated with the young parents in the process of raising their first child with severe hemophilia A. Prevention of over protection, early self awareness, talking to the child even when very little about how to climb and getting down of [...]
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Your Child Has Hemophlia!
I will never forget the day those words were spoken to me! All three times!I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!
I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!
How did you feel when your son was diagnoised? How did you know your child had a bleed?
Make it a great day!
Lori
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