Migration
I'm hemophiliac ,27 years old student from morocco, the contry isn't a rich one so the health care here for hemophiliac isn't good (if it existe because they don't give us factor only if it's to let us in life and they give us a little quantity) so i think that if i want a good life and good environment where i can have a family and a good job with a healthy care i have to look for a way to migrate out my contry to other one where i can find all that.
But, is it a good idea? if every hemophiliac leaves the contry to get a better life (if he could) those whome can't leave are the weakest who can't study enought and can't have a job and can't move to create a lobby to ask for a good healthy care and medicament.
All hemophiliac here aren't organized to do samething . So going to other contry where i can learn how hemophiliac do to get there rights and how to be organized and looking for help and coming back to do the samething here?
i don't what i have to think. i ask for your ideas and what you think?
But, is it a good idea? if every hemophiliac leaves the contry to get a better life (if he could) those whome can't leave are the weakest who can't study enought and can't have a job and can't move to create a lobby to ask for a good healthy care and medicament.
All hemophiliac here aren't organized to do samething . So going to other contry where i can learn how hemophiliac do to get there rights and how to be organized and looking for help and coming back to do the samething here?
i don't what i have to think. i ask for your ideas and what you think?
Replies to This Discussion
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Permalink Reply by David Moore on -
Ezzi,
I'm curious.....How do you get your factor in Morocco today? What is the process for a hemophiliac in your country to get healthcare? Where is it stored? At the hospital or with the government?
David
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Permalink Reply by Mary Beverstein-Valance on -
Hi David -
Mohammed & Josh/myself have been talking to each other for a short time now, but in Morocco they apparently do not believe in prescribing factor for anything less than a major bleed, as Mohammed has stated below.
We feel bad because there is nothing we can do to help him in any way, but he craves information on how hemophiliacs in the US cope with their medical issues. This is different for just about everyone, depending on where they live and who their insurance carrier(s) is/are.
Mary
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Permalink Reply by ezzi mohammed on -
Here we don't get factor if there is no bleed and it must be a bad or big external bleed. the factor are stored in gouvernement hospitale . the healthcare don't existe as what it must be the doctors don't like to have a hemophiliac on there hand because it's someone who it's very probable that he'll die. imagine that there is no adult doctor for hemophiliac in my city wich is the capital because here is the gouvernement hospitale where we have to go and the doctors there don't care about us because "they don't bleed".
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Permalink Reply by Dhawal on
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Ezzi,
From what I believe if you truly are dedicated to Hemophiliacs and the cause to help others, then you going to different country or staying back should not be any problem.
What do you believe will be your chances to be strong enough to make the right changes in your society.
If you belie that by staying back you make more then you should choose to stay back. If you believe by goind to different country would help then you should go abroad.
Thanks,
Dhawal.
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Permalink Reply by samuell price on -
I may not have the information you seek, but I can give you my knowledge of how i have handled my situation. I do live in America and yes factor is much easier to get here than in many countries.
Unfortunately, because factor is very expensive most hemophiliacs must seek out different insurance companies and charities that can provide us with the medication. I grew up in a family that supported me and gave me all they could. We lived in poverty and a few years we had alot of money. But in both situations, I still had no way of getting factor for long periods of time. You can not get factor often due to those that do not understand hemophilia. I could not get it here because insurance companies do not want to pay factor.
Coming to another country will give you opportunities, but it may not make getting factor easier. Look around at all of the countries with hemophilia support groups. Look at their medical organizations. Ask questions about how you would get factor in that country. Ask many questions. Keep a list of questions to ask. Then look at your answers. If you can get medication, education and knowledge to help others in Morocco then you should go.
There is nothing wrong with going where you can get help. The other hemophiliacs in other countries will teach you how to organize and support your self and others in Morocco. Then you bring back to your country all of your knowledge and make life better for you and others. Knowledge is the key that will open the door to your future. Learn the knowledge that will teach you how to help your self and others. Go where ever you can to learn and gain that knowledge. You are not betraying your country or other hemophiliacs in your country by leaving. You are giving them a voice and learning how to help them.
Latest Activity
My daughter turned one this past Sept too!
Third Annual "Clot Trot" 1 mile/5K walk/Run, Richland, WA at Howard Amon Park, Richland, WA
April 13, 2010 from 6pm to 7:30pm
Third annual Clot Trot informational 1 mile/5K walk/run for Hemophilia awareness
thanx. he turned one back in September but i just got internet back so i was able to add the pic.
Cute!!! 1st b.day pics are the best!
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I will never forget the day those words were spoken to me! All three times!I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!
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How did you feel when your son was diagnoised? How did you know your child had a bleed?
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