mybloodbrothers

Andrea Stafford
  • Female
  • Powell, WY
  • United States
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January 25
Andrea Stafford is now friends with Armando Serrano and Colton
January 25
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Andrea Stafford was featured
January 24
When should I switch to a toddler bed? My son is 23 months old and just today climbed then fell out of his crib?
January 24
Andrea Stafford updated their profile photo
January 24
Mom looking for support.
January 24
Andrea Stafford is now a member of mybloodbrothers
January 24

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At 4:22pm on January 25, 2010, David Moore said…
Wow that's interesting....yeah I guess I didn't expect their to be a large hemophilia community there. I worked with a group that did some outreach in Wyoming in 2008. Do you attend the Rocky Mountain Chapter in Montana then?
I'm curious how did u find the site? It always impresses me how the word spreads about Mbb. Well, please spread the word in Wyoming - Lol
David
David
At 10:21pm on January 24, 2010, Tina Olson said…
My son is 3 and was just diagnosed in Oct. with hem. A. Although it has been tough you are kind of lucky to have a diagnosis early. My son also had prolonged bleeding after circumcision, cuts, and ankle sprains that no one attributed to hem. If we had known after circ. he could of been getting proper tmt for the bleeds. And your son will not know any different. It will always of been part of his life.
At 10:16pm on January 24, 2010, Tina Olson said…
I would switch now to a toddler bed. My son was about 2, you just need to have a side wall so they don't fall out. I got a lightning mcqueen I think was only about $40 and you can use the crib mattress in it. He loved it had no problems. I did have to lay beside the bed at night for a while to keep him in it.
At 6:24pm on January 24, 2010, Armando Serrano said…
Welcome to the site Andrea!
At 5:16pm on January 24, 2010, David Moore said…
Hi Andrea,
Welcome to MyBloodBrothers. Hope you find the site helpful for connecting with others, sharing/giving information and advice. You are our first member from Wyoming! Is there a big hemophilia community out there? Feel free to invite others from the Wyoming community.
Talk to you soon,
David
 
 

Latest Activity

I second Charles' post. I have a few tattoos as well and the main thing is to treat before and a few days after and you should be set.
4 hours ago
charles skopinsky gave a gift to Gina
5 hours ago
hey bob i have 7 tattoo's i am a the same as you a hemophilia A factor 8 severe. all you need to do is juice up about a hour before you know when you are getting it, so don't juice up and go out to pick out a tattoo then get it, that might take you…
5 hours ago
14 hours ago
def. is. We havent even gone for the hearing yet. I just kno its gonna be a long stressful period again.
17 hours ago
I remember goign through the ssi stuff. Aww good ol stressful days
17 hours ago
18 hours ago
Jaycee McCain added a photo
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“Vale a pena ler de novo!”O que vou fazer quando crescer?/ Meeting to Talk about jobs, life

Erika Okazaki, is hematologist in our multidisciplinary team at the hemophilia center. She is very sensitive and  is fond of psychosocial matters! She had a course about Project’s Management at Vanzolini Foundation in São Paulo and had the great idea of applying her studies to promote with a group of other professionals, A PROJECT FOR [...]

looks like planet Mars…/Parece Marte!

Atacama desert in sunset…PHOTOGRAPHY can be a good job option! No deserto do Atacama, o pôr do astro sol! Fotografar sería um bom emprego para quem tem hemofilia Tagged: art, Bloody Art and photography, hemophilia, red, Young

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Your Child Has Hemophlia!

I will never forget the day those words were spoken to me! All three times!

I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!

I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!

How did you feel when your son was diagnoised? How did you know your child had a bleed?

Make it a great day!
Lori
 

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