mybloodbrothers

Andrés Eduardo Chicué
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  • Cali
  • Colombia
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October 15, 2009
August 18, 2009
Impressive! I hope that everything goes well to you!!!
August 18, 2009
July 2, 2009
June 25, 2009
June 22, 2009
June 22, 2009
June 22, 2009
June 22, 2009
June 22, 2009
Andrés Eduardo Chicué is now a member of mybloodbrothers
June 22, 2009

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List your interests/hobbies/activities
salir con mis amigos y hablar..., escribir, escuchar musica, ver tv, el buen cine, los comics, ¡escribir!, las figuras de accion, los animales, los converse, todo lo que tenga que ver con DC Comics!!! en especial Batman y la liga de la justicia, tambien me gusta Buffy, Transformers, los animales (ornitólogo aficionado), ¡¡escribir!!, lovecraft y vampiros...ah, y ser yo!
Favorite Movie
Toy strory 2, Amelie, Brother Bear, "The Wall"; Pink Floyd, The Dark Knight, lilo & stitch, milagros inesperados, Nightmare Before Christmas, La lista de Schindler, Thelma And Louise, Requiem For A Dream, la marche de l empereur, Big Fish, Charlie And The Chocolate Factory

Comment Wall (3 comments)

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At 5:22am on October 15, 2009, Linda Lawson said…
Have a great b'day tomorrow
At 10:28am on July 2, 2009, Armando Serrano said…
como estas hermano? Veo que te gustan las peliculas. A mi me gustan los deportes como el futbol americano y el beisbol. te marco otro dia. adios!
At 5:24pm on June 22, 2009, Linda Lawson said…
Welcome to the site.
 
 

Latest Activity

I second Charles' post. I have a few tattoos as well and the main thing is to treat before and a few days after and you should be set.
4 hours ago
charles skopinsky gave a gift to Gina
5 hours ago
hey bob i have 7 tattoo's i am a the same as you a hemophilia A factor 8 severe. all you need to do is juice up about a hour before you know when you are getting it, so don't juice up and go out to pick out a tattoo then get it, that might take you…
5 hours ago
14 hours ago
def. is. We havent even gone for the hearing yet. I just kno its gonna be a long stressful period again.
17 hours ago
I remember goign through the ssi stuff. Aww good ol stressful days
17 hours ago
18 hours ago
Jaycee McCain added a photo
yesterday

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“Vale a pena ler de novo!”O que vou fazer quando crescer?/ Meeting to Talk about jobs, life

Erika Okazaki, is hematologist in our multidisciplinary team at the hemophilia center. She is very sensitive and  is fond of psychosocial matters! She had a course about Project’s Management at Vanzolini Foundation in São Paulo and had the great idea of applying her studies to promote with a group of other professionals, A PROJECT FOR [...]

looks like planet Mars…/Parece Marte!

Atacama desert in sunset…PHOTOGRAPHY can be a good job option! No deserto do Atacama, o pôr do astro sol! Fotografar sería um bom emprego para quem tem hemofilia Tagged: art, Bloody Art and photography, hemophilia, red, Young

RSS

Your Child Has Hemophlia!

I will never forget the day those words were spoken to me! All three times!

I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!

I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!

How did you feel when your son was diagnoised? How did you know your child had a bleed?

Make it a great day!
Lori
 

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