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Brandon Freund
- 26, Male
- Fort Smith
- Canada
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Hello! I'm 41 years old and have Hemophilia A. I'm also a Licensed Practical Nurse. I've worked with many patients with ports and I just had a port implanted yesterday. There are times where the ports can be picky. Don't give up! I hope it ends up w…
Brandon. I have a 31 yr old son that when he was nine we could not get a vain to litteraly save his life. I took him to CA and they put in a line under his skin that one end is connected to a vain the other to an artry. it is a one shot everytime, t…
Well the past month has been pretty hectic. Farrah and I brought Hayze to Edmonton on February 2nd to get his Port put in. We spent over 2 weeks there. The surgery went well, Hayze was up and running around the day after. The Hemo nurses trained us…
Hey Brandon i hope you guys have everything under control. Also in addition to what Armando and Carri said, mouth bleeds will tend to bleed more especially at night because saliva breaks down clots in the mouth. You might talk to your doctor about A…
Hi Brandon- we use a standard spot bandaid to cover the pin hole but take it off by bedtime since the skin tends to be very sensitive on little folk.
We don't keep the boys accessed unless there is a bleed & we need to dose several hours a day- very…
Thanks for the tips you guys, much appreciated. Even though this was a minor bleed is still scared us a lot. We've been lucky so far, no joint or muscle bleeds yet "knock on wood". Im surprised he hasnt had a bleed yet, especially with him being suc…
I forgot to mention, Tyin gets prophy to keep his inhibitor at bay- he is dosed every other day. Connor is being treated for his inhibitor and is getting dosed every day. Tyin is on Advate and Connor is on Alphanate (plasma derived Von Willebrands f…
LOL absolutely AMAZING Photo!! And would have loved to be your neighbor with an empty freezer that day :0)
Hi Brandon- each person bleeds differently with hemophilia. I have 4 year old twins with severe hemophilia A and inhibitors in various stages of repair. My boys bleed differently from each other- even being twins and inhibitors! Connor (active inhib…
Profile Information
- List your interests/hobbies/activities
- Huge Hockey and UFC fan. Like working out, reading, golfing, spending time with friends and family. Used to love skateboarding but feel to old to be jumping around on a skateboard now lol.
- Favorite Movie
- Shawshank Redemption, Blood in Blood out, American Me and Menace to Society
- Favorite Sports Team
- Edmonton Oilers, Pittsburgh Penguins
- Favorite Video Game
- not really into games anymore. Probably Metal Gear Solid.
My son was diagnosed with Severe Hemophilia A just before christmas 09. Thought id join to meet people with experience. Look forward to meeting you all.
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Brandon Freund's Blog
Stressed out!
Well the past month has been pretty hectic. Farrah and I brought Hayze to Edmonton on February 2nd to get his Port put in. We spent over 2 weeks there. The surgery went well, Hayze was up and running around the day after. The Hemo nurses trained us how to infuse Hayze as well, which also went well. We feel confident and more secure now that we have this knowledge. We started his prophylaxis once we got home. Everything went well the first 3 infusions, but last friday we could not get any blood r… Continue
Posted on February 28, 2010 at 12:13pm — 2 Comments
had our first scare
Well me and Farrah had our first scare with our 14 month old son Hayze last night. He is not yet on prophy. Our appointment to get his Port isnt until march 2nd. Anyways, last night he fell and bit his tongue pretty good. Blood oozed for a minute or so, but clotted normally. We couldnt believe it. It completely stopped bleeding and we were able to see the spilt at the tip of his tongue. We were relieved of course, until this morning. Farrah woke up after i went to work and she noticed a pool of… Continue
Posted on January 29, 2010 at 2:00pm — 6 Comments
Comment Wall (3 comments)
- At 12:12pm on March 10, 2010,
JASON CAMPAGNA JR said…
- hi, im a mom that has a son that is 17 months old with sereve hemophilia A. have u had any problems with him getting bleeds yet
- At 6:00pm on January 26, 2010,
Armando Serrano said… - welcome to the site brandon!
- At 3:40pm on January 11, 2010,
Josh Valance said… - Red Wings is because of my wife shes from Saginaw,Michigan I am originally from New Jersey then lived in Philly for a while then moved to Toronto for about 20yrs or so, yes I am a BIG hockey fan, look forward to talking to you brother.
Latest Activity
I second Charles' post. I have a few tattoos as well and the main thing is to treat before and a few days after and you should be set.
hey bob
i have 7 tattoo's i am a the same as you a hemophilia A factor 8 severe. all you need to do is juice up about a hour before you know when you are getting it, so don't juice up and go out to pick out a tattoo then get it, that might take you…
def. is. We havent even gone for the hearing yet. I just kno its gonna be a long stressful period again.
I remember goign through the ssi stuff. Aww good ol stressful days
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“Vale a pena ler de novo!”O que vou fazer quando crescer?/ Meeting to Talk about jobs, life
Erika Okazaki, is hematologist in our multidisciplinary team at the hemophilia center. She is very sensitive and is fond of psychosocial matters! She had a course about Project’s Management at Vanzolini Foundation in São Paulo and had the great idea of applying her studies to promote with a group of other professionals, A PROJECT FOR [...]
looks like planet Mars…/Parece Marte!
Atacama desert in sunset…PHOTOGRAPHY can be a good job option! No deserto do Atacama, o pôr do astro sol! Fotografar sería um bom emprego para quem tem hemofilia Tagged: art, Bloody Art and photography, hemophilia, red, Young
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Your Child Has Hemophlia!
I will never forget the day those words were spoken to me! All three times!I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!
I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!
How did you feel when your son was diagnoised? How did you know your child had a bleed?
Make it a great day!
Lori
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