mybloodbrothers

David Moore
  • 29, Male
  • Kansas City
  • United States
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Your Fitness
3 Replies

Started this discussion. Last reply by Andy Blackledge Mar 7.

Migration

Replied Nov. 27, 2009

Jobs

Replied Nov. 10, 2009

 

Welcome to David's Page

Latest Activity

David Moore received a gift from Dhawal
March 8
I've got moderate hemophilia, but my joints are still okay. No major arthritis going on. I play ice hockey once a week on a men's team in their recreational league. I get on the ice a few extra times a month to referee youth and adult hockey games.…
March 7
David Moore and Narasimha Rao are now friends
March 7
There are 579 members on mybloodbrothers
March 7
I am 66 years old with moderate Hemophilia and an inhibitor. I tried running and other moderate exercise without success until my 30's. About 25 years ago I started swimming about a half mile (20-30 minutes) three days a week. It helped me a lot to…
March 6
Great topic David! Well I began my fitness change with stopping my consumption of soda. I'll still have a soda if I go out to dinner or something but at home its juice or water. And I know that when people think water they think just plain water bu…
March 4
March 4
mybloodbrothers now has YouTube
March 2

Profile Information

Favorite Movie
In America, The Godfather, Streetcar Named Desire, Cool Hand Luke
Favorite Sports Team
St. Louis Cardinals
Favorite Video Game
Nintendo Wii - pretty much anything

David Moore's Blog

David Moore

Thoughts for all Hemophilia Non Profit groups

Here's a blog entry from a great marketer Seth Godin. He's give powerful advice to support groups and non-profits.

Seth's entry today is perfect for those of us who get involved in our local hemophilia chapter.

Check out this link.....

http://sethgodin.typepad.com/seths_blog/2009/09/the-problem-with-non.html

Posted on September 15, 2009 at 8:02am —

David Moore

10 Ways to Be Interesting

For those of us who love social networking, blogging, etc. These are some cool ideas sent to me from a blog I follow by a famous author Ben Casnocha. Here's what been posted this week.

Russell Davies, three years ago, posted worthwhile tips for how to become a more interesting person. His advice is premised on two assumptions:

The way to be interesting is to be interested. You’ve got to find what’s interesting in everything, you’ve got to be good at noticing things, you’ve got to be good at li… Continue

Posted on June 28, 2009 at 11:14am —

David Moore

MBB Getting Some Buzz!

Hey Everybody,
Just wanted to let you know about a cool blog post written about this social network at:

http://blog.ning.com/2008/10/my-blood-brothers.html

Enjoy!

David

Posted on October 10, 2008 at 10:19am —

David Moore

New Shipment of MBB T-shirts Just Arrived! (FREE)


Our new shipment of shirts just arrived! We are now featuring toddler sizes as well (2T to be exact)
The MyBloodBrothers.com t-shirts look great! We hope to see them at upcoming events, summer camps, and at the Hemophilia Walks this year.

For those of you who've already ordered… Continue

Posted on June 24, 2008 at 9:00pm — 2 Comments

David Moore

Why MyBloodBrothers.com?

Welcome to MBB!


What the site is


This site is all about staying connected. Guys in the hemophilia community meet at summer camp, events, and annual meetings. But until now, there hasn't been a social venue for everyone to keep in touch. We developed MBB for guys with hemophilia and their friends to have a dedicated place online to hang out.


What the site is not


This is not really an educational site - there's so much

Continue

Posted on January 24, 2008 at 2:19pm —

Comment Wall (195 comments)

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At 1:06pm on March 08, 2010, Dhawal gave David Moore a gift
A heartous welcome to the newly born :)
At 8:19am on February 16, 2010, Natalie Duncan said…
Hi David,

Yes - I work at IHTC and am glad to b here. Stumbled upon MBB while researching the Hemolog i-phone application. Thanks for the welcome!

Natalie
At 7:07pm on February 13, 2010, Barry Haarde said…
Thanks David, the site is great. I only just found out about it from Josh Valance. I'm in Houston's Blood Brotherhood program. Is there a time when members get on the chat room on an ongoing basis?
At 12:52pm on January 25, 2010, Andrea Stafford said…
Hey David, ha no not too many Hemophilia's in WYO. 1 in the town I live in. He's a 60 year old man, very sweet.
At 3:32pm on December 13, 2009, Luis Aguayo said…
I think its real awsome that you created a site like this! Congrats on the new addition to your family, my son has been a blessing to my life and Im sure your son will be to yours.
At 11:45pm on December 3, 2009, Sarah said…
Congrats David to you and your wife.
At 9:56pm on November 16, 2009, Armando Serrano said…
congrats on the new addition to your family. have fun david!
At 3:25pm on November 13, 2009, frederica cassis said…
Sure David!

ps: a joke about "bloggers", hope i did it right !:p
At 12:20pm on November 13, 2009, frederica cassis said…
First thing, the most important one: wellcome to your baby in our planet earth!!! a gentle kiss on the forehead from tia Ika:)
well, US is so biiig...where too? no plans for now...but who knows? i'd love to share my stories with you...your site is great! an open minded one...i admire that.
COME TO BUENOS AIRES next july for the WFH international congress; i'll be presenting severals works and chairing one session in the psychosocial area.
let's mature the ideas David! i wish i had more time to go over all the posts...just can't..:(
see u soon
frederica
At 5:14am on September 17, 2009, Carri Nease said…
Congrats on your new arrival! Do post all the details!
 
 

Latest Activity

I second Charles' post. I have a few tattoos as well and the main thing is to treat before and a few days after and you should be set.
4 hours ago
charles skopinsky gave a gift to Gina
5 hours ago
hey bob i have 7 tattoo's i am a the same as you a hemophilia A factor 8 severe. all you need to do is juice up about a hour before you know when you are getting it, so don't juice up and go out to pick out a tattoo then get it, that might take you…
5 hours ago
14 hours ago
def. is. We havent even gone for the hearing yet. I just kno its gonna be a long stressful period again.
17 hours ago
I remember goign through the ssi stuff. Aww good ol stressful days
17 hours ago
18 hours ago
Jaycee McCain added a photo
yesterday

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“Vale a pena ler de novo!”O que vou fazer quando crescer?/ Meeting to Talk about jobs, life

Erika Okazaki, is hematologist in our multidisciplinary team at the hemophilia center. She is very sensitive and  is fond of psychosocial matters! She had a course about Project’s Management at Vanzolini Foundation in São Paulo and had the great idea of applying her studies to promote with a group of other professionals, A PROJECT FOR [...]

looks like planet Mars…/Parece Marte!

Atacama desert in sunset…PHOTOGRAPHY can be a good job option! No deserto do Atacama, o pôr do astro sol! Fotografar sería um bom emprego para quem tem hemofilia Tagged: art, Bloody Art and photography, hemophilia, red, Young

RSS

Your Child Has Hemophlia!

I will never forget the day those words were spoken to me! All three times!

I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!

I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!

How did you feel when your son was diagnoised? How did you know your child had a bleed?

Make it a great day!
Lori
 

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