mybloodbrothers

John Reed
  • 51, Male
  • Cyril, OK
  • United States
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Latest Activity

For sure want to dose up to 100% before and try to stay above 50% for at least 48-72 hours. I had that done years ago and just treated myself, did not take Amicar. John
January 23
John Reed was featured
October 20, 2009
October 20, 2009
July 28, 2009
John Reed and Colton are now friends
July 28, 2009
June 26, 2009
June 25, 2009
John Reed updated their profile photo
June 23, 2009

Profile Information

List your interests/hobbies/activities
Fishing, bird hunting, bowling, golf some (used to be a fanatic), gardening, playing cards, cooking
Favorite Movie
don't know subject to change
Favorite Sports Team
St Louis Cardinal Baseball
Favorite Video Game
don't play, but want to try WII
April 18th, I got remarried. Carol and I have been friends for years and are now the new happy couple.
John

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Comment Wall (5 comments)

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At 6:37am on October 20, 2009, SunShine* said…
Hi John, long time not spoken to eachother.
Seems the maling list are down...
Pitty however on all good things becomes an end....

Greetz,
Karin
The Netherlands
At 6:07pm on July 28, 2009, Kasey Morse said…
Hey John, how is everything?
At 9:28pm on June 25, 2009, Armando Serrano said…
hey john how are you brother?
At 2:45pm on May 14, 2009, Armando Serrano said…
Hello John:

Welcome to the site. What do you think about the site? Keep in touch.
At 5:57pm on May 4, 2009, Andy Blackledge said…
Hey John: Looks like we are already friends on each other's pages. You're all set. Andy
 
 

Latest Activity

I second Charles' post. I have a few tattoos as well and the main thing is to treat before and a few days after and you should be set.
4 hours ago
charles skopinsky gave a gift to Gina
5 hours ago
hey bob i have 7 tattoo's i am a the same as you a hemophilia A factor 8 severe. all you need to do is juice up about a hour before you know when you are getting it, so don't juice up and go out to pick out a tattoo then get it, that might take you…
5 hours ago
14 hours ago
def. is. We havent even gone for the hearing yet. I just kno its gonna be a long stressful period again.
17 hours ago
I remember goign through the ssi stuff. Aww good ol stressful days
17 hours ago
18 hours ago
Jaycee McCain added a photo
yesterday

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“Vale a pena ler de novo!”O que vou fazer quando crescer?/ Meeting to Talk about jobs, life

Erika Okazaki, is hematologist in our multidisciplinary team at the hemophilia center. She is very sensitive and  is fond of psychosocial matters! She had a course about Project’s Management at Vanzolini Foundation in São Paulo and had the great idea of applying her studies to promote with a group of other professionals, A PROJECT FOR [...]

looks like planet Mars…/Parece Marte!

Atacama desert in sunset…PHOTOGRAPHY can be a good job option! No deserto do Atacama, o pôr do astro sol! Fotografar sería um bom emprego para quem tem hemofilia Tagged: art, Bloody Art and photography, hemophilia, red, Young

RSS

Your Child Has Hemophlia!

I will never forget the day those words were spoken to me! All three times!

I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!

I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!

How did you feel when your son was diagnoised? How did you know your child had a bleed?

Make it a great day!
Lori
 

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