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Lyndsay
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- We love going to the lake and swimming and hanging out at home watching movies.
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Hi Im Lyndsay. I have three children, 2 girls and a boy. Gage is 2 years old and is Severe Factor VIII deficient. Hemophilia does not run in our family so he is the first. I have since found out that I am a carrier. My factor levels are 46 %. I havent had any major problems with bleeding, although Ive bruised very easily my entire life and always wondered why....now I know! Im pretty sure my oldest daughter is also a carrier because she bruises just like I did, not sure about my youngest daughter. Gage has done extremely well and not had any major issues. He has a port and is on prophy 3 days a week.
Hi Im Lyndsay. I have three children, 2 girls and a boy. Gage is 2 years old and is Severe Factor VIII deficient. Hemophilia does not run in our family so he is the first. I have since found out that I am a carrier. My factor levels are 46 %. I havent had any major problems with bleeding, although Ive bruised very easily my entire life and always wondered why....now I know! Im pretty sure my oldest daughter is also a carrier because she bruises just like I did, not sure about my youngest daughter. Gage has done extremely well and not had any major issues. He has a port and is on prophy 3 days a week.
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I second Charles' post. I have a few tattoos as well and the main thing is to treat before and a few days after and you should be set.
hey bob
i have 7 tattoo's i am a the same as you a hemophilia A factor 8 severe. all you need to do is juice up about a hour before you know when you are getting it, so don't juice up and go out to pick out a tattoo then get it, that might take you…
def. is. We havent even gone for the hearing yet. I just kno its gonna be a long stressful period again.
I remember goign through the ssi stuff. Aww good ol stressful days
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“Vale a pena ler de novo!”O que vou fazer quando crescer?/ Meeting to Talk about jobs, life
Erika Okazaki, is hematologist in our multidisciplinary team at the hemophilia center. She is very sensitive and is fond of psychosocial matters! She had a course about Project’s Management at Vanzolini Foundation in São Paulo and had the great idea of applying her studies to promote with a group of other professionals, A PROJECT FOR [...]
looks like planet Mars…/Parece Marte!
Atacama desert in sunset…PHOTOGRAPHY can be a good job option! No deserto do Atacama, o pôr do astro sol! Fotografar sería um bom emprego para quem tem hemofilia Tagged: art, Bloody Art and photography, hemophilia, red, Young
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Your Child Has Hemophlia!
I will never forget the day those words were spoken to me! All three times!I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!
I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!
How did you feel when your son was diagnoised? How did you know your child had a bleed?
Make it a great day!
Lori
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Carri
Welcome to MyBloodBrothers.com! Glad to have you on the site. We are excited about all the moms in the community that have joined the site and we hope that many more will keep coming.
Feel free to invite friends from the community and stay connected via MyBloodBrothers.com.
Take care,
David