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ezzi mohammed
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ezzi mohammed's Discussions
Migration
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I'm hemophiliac ,27 years old student from morocco, the contry isn't a rich one so the health care here for hemophiliac isn't good (if it existe because they don't give us factor only if it's to let…
Started this discussion. Last reply by samuell price Jan 24.
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I may not have the information you seek, but I can give you my knowledge of how i have handled my situation. I do live in America and yes factor is much easier to get here than in many countries.
Unfortunately, because factor is very expensive most…
Ezzi,
From what I believe if you truly are dedicated to Hemophiliacs and the cause to help others, then you going to different country or staying back should not be any problem.
What do you believe will be your chances to be strong enough to make…
Hi David -
Mohammed & Josh/myself have been talking to each other for a short time now, but in Morocco they apparently do not believe in prescribing factor for anything less than a major bleed, as Mohammed has stated below.
We feel bad because the…
Here we don't get factor if there is no bleed and it must be a bad or big external bleed. the factor are stored in gouvernement hospitale . the healthcare don't existe as what it must be the doctors don't like to have a hemophiliac on there hand bec…
Ezzi,
I'm curious.....How do you get your factor in Morocco today? What is the process for a hemophiliac in your country to get healthcare? Where is it stored? At the hospital or with the government?
David
I'm hemophiliac ,27 years old student from morocco, the contry isn't a rich one so the health care here for hemophiliac isn't good (if it existe because they don't give us factor only if it's to let us in life and they give us a little quantity) so…
I'm hemophiliac ,27 years old student from morocco, the contry isn't a rich one so the health care here for hemophiliac isn't good (if it existe because they don't give us factor only if it's to let us in life and they give us a little quantity) so…
Hello.
i have the same probleme as you ,when i get my Master in PHE (Physic of Hight Energy) i discover that the only thing i can do is to teach Math or Physic and it's not what i love to do ,may be only here in my contry where the probleme existe.…
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Comment Wall (2 comments)
- At 3:30am on October 30, 2009,
Mary Beverstein-Valance said…
- Hi Ezzi - nice to chat with you the other day! Welcome to the community!
- At 4:18pm on October 29, 2009,
Josh Valance said…
- Welcome to the site and the family my brother
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i wont b a stranger now that we have the internet back.
Hey Armando,
The only difference is that a power port, when used with a special access needle, can accommodate power infusions with contrast, like a CT scan or MRI. UVA Medical Center, where I'm followed, just happens to use those when placing port…
Originally, having hemophilia did disqualify you from getting a pilot's license. That was changed in the 1970s when a commercial pilot with severe hemophilia challenged the FAA in court on this ruling and won. He had been flying for several years an…
Ryan:
I have a question for you: Whats the difference with a power port and a regular port? Are they the same or different? Also, did your hemotologist gave you the option of an AV Vistula? I was just wondering. I was only going to ask you a questi…
Thanks for the information. I'll look into it. Thanks.
thanks for updating us on your sons health. hope everything is well overall. take care esther and do not be a stranger to mbb.
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Raising our child in the middle of bruises and visits to the center… Educando nosso filho entre um sangramento e visita ao ambulatório…
As parents we know that our children will have to face the days at school, later college, first job, first love… it’s an endless list of happenings, of events that we can’t control. But what we can do is to transform an event into a SIGNIFICANT EXPERIENCE. If you change the idea you have about your [...]
With eyes closed ;)!Body language / Consciência corporal: sentir os pezinhos pisando firme
SINCE BRUNO’S first visit 2 years and a half ago at our Hemophilia Center, I had participated with the young parents in the process of raising their first child with severe hemophilia A. Prevention of over protection, early self awareness, talking to the child even when very little about how to climb and getting down of [...]
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Your Child Has Hemophlia!
I will never forget the day those words were spoken to me! All three times!I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!
I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!
How did you feel when your son was diagnoised? How did you know your child had a bleed?
Make it a great day!
Lori
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