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frederica cassis
- 44, Female
- sao paulo
- Brazil
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frederica cassis's Discussions
School Tales: how does it work in real life?
Replied Aug. 31, 2009
Hemophilia congress in 2010....Buenos Aires...
Started Jun. 20, 2009
frederica cassis's Page
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Oh ! what a beautiful picture! I wish I was in it too!! good moments in Al Saro....
Para mis hermanos e hermanas de sangre,
Lo que yo aprendi tambien es que existem hemofílicos graves com menos de 1% de factor 8 que no sangran tanto como otros con la misma cantidad mínima...cada madre y padre de um menino con hemofilia le dirá que…
I totally agree with Candy about keeping confidentiality untill the kid has the will to share with his friends through a presentation, or through flash cards what is hemophilia. He feels in control and usually he has a lot of friends that grow with…
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- List your interests/hobbies/activities
- psychotherapist at the hemophilia Center at Hospital das Clinicas in Sao Paulo since 94 and psychoterapist in private clinic...have 3 children, like to write poems, draw,dance, read, jogg and pilates as sport activities. I did fencing for 5 years ,stopped last december when my father had cancer and i started to travel a lot to Uruguai to assist and visit him and mom. He died in May 09...i made a special post in my blog www.blood4.wordpress.com for him (under the tag dad, father, baba)...life continues....
- Favorite Movie
- Crash, the piano, Weithering heights, X men, Pixar movies
- Favorite Sports Team
- Ahly (Egyptian soccer team)
- Favorite Video Game
- don't like video games...
frederica cassis's Photos
Frederica cassis's Blog
AFTER PAIN , COMES LIFE ALWAYS" / "DEPOIS DA DOR, VEM A VIDA!"
Title of a young teenager with hemophilia A, severe...who had experienced several hemarthroses in his knee.
check the drawing in www.blood4.wordpress.com
visit us there too!
have a nice weekend!
ica
check the drawing in www.blood4.wordpress.com
visit us there too!
have a nice weekend!
ica
Posted on June 12, 2009 at 8:00pm —
Comment Wall (8 comments)
- At 2:41pm on November 13, 2009,
David Moore said…
- Hi Frederica,
Thank you! She is actually one week overdue...so she should be here any day now. Thank you for your nice words.
Yes, I would love to meet you at the WFH meeting next year. I am looking into attending. If you come to the US, let me know, but otherwise I'll plan on meeting you in Buenos Aires.
I love your blog too!
Have a great day,
David
- At 11:24am on November 13, 2009,
David Moore said…
- Hi Frederica,
Are you going to be in the US in the next year? I'd like to interview you about your work with the worldwide community and post the video on my new blog.
Let me know,
Thanks,
David
- At 10:59am on November 12, 2009,
Obay wael abukwaik said…
- hello frederica , its long time since last time i heared from you.
and missing for another visit from you to jordan.
i wish to know when you get ready to visit us.
thanks
- At 4:48am on November 12, 2009,
Karen Oroud said…
- Hi Frederica. I was able to contact you before, but my computer crashed. I just want to thankyou for everything that you have done for the hemophiliacs in Jordan. I have two sons (one is almost 11 and the other is 6), and I am looking for ways to buildup the communitty here in southern Jordan. I am glad that I found you at bloodbrothers.
- At 5:19am on June 10, 2009,
Obay wael abukwaik said…
- hello ,
iam one of frederica's " good bloody " friends , thankx for the invitation frederica .
and its a great site .
thank you
- At 5:00am on June 10, 2009,
frederica cassis said…
- Gracias! Thank you!
I am happy to be part and i have send to all my "good"bloody friends an invitation :) let's share good moments and minimize the bad ones!
- At 10:01pm on June 9, 2009,
Armando Serrano said… - bienvendios a nuestra comunidad de hemofilia!
- At 8:48pm on June 9, 2009,
Linda Lawson said… - Welcome to the site.
Latest Activity
hey everyone. its been awhile since i have been on. well my lil one is doing good. he has givin himself his first mouth bleed and he has already had his first surgery. Get a hold of me. Later Esther
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With eyes closed ;)!Body language / Consciência corporal: sentir os pezinhos pisando firme
SINCE BRUNO’S first visit 2 years and a half ago at our Hemophilia Center, I had participated with the young parents in the process of raising their first child with severe hemophilia A. Prevention of over protection, early self awareness, talking to the child even when very little about how to climb and getting down of [...]
Touching, stroking…gestures/ Delicadeza ao tocar
“Walden” 1969, frozen film frame number 15 : “my dream city 1966″ from JONAS MECAS http://picpal.com/mecas.html Tagged: love, red orange photography
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Your Child Has Hemophlia!
I will never forget the day those words were spoken to me! All three times!I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!
I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!
How did you feel when your son was diagnoised? How did you know your child had a bleed?
Make it a great day!
Lori
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