Calling Arkansans
I tried to get in touch with the Arkansas chapter of Hemo. Foundation, but have got no reply.
Is there anyone on this site in Arkansas that's involved?
We get occasional mailings about stuff going on in Fort Smith or Little Rock, but nothing in Northwest Arkansas. I'd love to help organize something if I could get in touch with the right people!
Thanks for any info.
Is there anyone on this site in Arkansas that's involved?
We get occasional mailings about stuff going on in Fort Smith or Little Rock, but nothing in Northwest Arkansas. I'd love to help organize something if I could get in touch with the right people!
Thanks for any info.
Comment
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Comment by Tom Albright on July 12, 2009 at 4:25pm -
I've lived in northwest arkansas the past 17 years. i used to be involved in the arkansas chapter, but found the same problems you mentioned; plus many other problems. I joined up with the kansas city chapter (Midwest Hemophilia Asssociation); they have a "River Float" every July in Noel, MO. (very close to northwest arkansas). I've found that they have a much better chapter than the arkansas one.
Good to finally meet someone in this area who wants to be involved. Call me anytime.
Tom Albright
Rogers, AR
479-586-0289
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I second Charles' post. I have a few tattoos as well and the main thing is to treat before and a few days after and you should be set.
hey bob
i have 7 tattoo's i am a the same as you a hemophilia A factor 8 severe. all you need to do is juice up about a hour before you know when you are getting it, so don't juice up and go out to pick out a tattoo then get it, that might take you…
def. is. We havent even gone for the hearing yet. I just kno its gonna be a long stressful period again.
I remember goign through the ssi stuff. Aww good ol stressful days
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Your Child Has Hemophlia!
I will never forget the day those words were spoken to me! All three times!I have three sons with severe hemophilia A. With no family history this was quite A shock to us! Our HTC provided us with a wealth of information. We also found wonderful resources at our local hemophilia chapter as well as the National Hemophilia Foundation. One thing that helped me was being able to talk to other moms who had kids with hemophilia. However 26 years ago that was a bit of a challenge! I am thrilled to be part of Hemophilia Moms so I can share my experiences with all of you!
I was so frustrated all those years ago when no one could answer a question that I felt was pretty straight forwar. " How big is a bruise before it is a bleed?" I always got the same answer..."you will know!" Now how was I going to know? I had never seen a "bleed"! I barely knew what hemophilia was! However, when my son had his first bleed....I knew it! When he had his first spontanious bleed....I knew! As mothers we need to trust ourselves. Take advatage of all the resources that are available! Twenty six years ago I would have loved to be able to talk to other moms in my shoes with the click of a mouse!
How did you feel when your son was diagnoised? How did you know your child had a bleed?
Make it a great day!
Lori
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